What is Public and Patient Involvement?
Public and Patient Involvement is research being carried out ‘with’ or ‘by’ members of the public and patients rather than ‘to’, ‘about’ or ‘for’ them (INVOLVE; http://www.invo.org.uk
It is active partnership between researchers and patients and/or the public.
What is Public and Patient Engagement?
Public and Patient Engagement is a two-way process of sharing knowledge and interacting with the public but does not represent active partnership.
ICC-CTN Involvement activities
- Identifying what research is most important to patients and the public
- Helping to design research studies & discussing types of research
- Providing feedback on trial processes e.g. how consent is obtained
- Reviewing patient/public-facing materials e.g. study information leaflets
- Improving dissemination to the public
ICC-CTN Engagement activities
- Public focus groups
- Public surveys (national & international)
- Public dissemination activities
The Irish Critical Care-Public and Patient Involvement group
International Public & Patient Involvement Activities
